Born 20th September 1987 - died 23rd March 2004 - victim of MRSA at 16 years
My sweet, sweet Karen it seems only
yesterday that you were born and the joys that your birth brought to me and your
father were immense. Now in this profound sorrow I can almost hardly realise
that you have gone to Heaven. How cruel life was to us our only daughter
entering hospital for an appendicitis operation, during which an ovarian cyst
was discovered, ended up getting infected by MRSA in the ovarian cyst wound
leading to our present heartbreaking reality.
Entering hospital on 28th
January 2004 at 10.30 a.m. for observation, you were operated at 6.00p.m. You
were recovering quite well and were on you feet, but for a slight fever which
I kept telling the nurses and asking them
why you were not transferred to another room; but they answered that it was
because of the fever but that some patients have a slight fever after
operations, so not to worry. But on Sunday when the fever went up they wanted
to take blood tests for culturing and even though I told and insisted with tears
in my eyes, the senior doctor on duty (as its seems there were no specialist
around on Sunday) that you were allergic to Penicillin he prescribed Penicillin
– result …on the morrow you were in ITU where you spent 7 long painful weeks to
the day of your DEATH. The penicillin gave you severe diarrhoea and how more
painful it was for you with that infected open wound; the diarrhoea lasted up
to the day of your death. Futile were the sachets prescribed by the
bacteriologists and consultants in ITU to replace the fauna in the intestines
the damage was done. Apart from that you swelled because of Penicillin, became
dehydrated and the rash was so intense that you peeled all over during the
following week. All this apart from the 12 inch diameter infection which
resulted from the CT Scan taken with an open wound (as the specialist had
removed the stitches for the puss to come out and a swab test was taken – later
proving positive to MRSA). My dearest I can still hear your cry when you were
having the stomach spasms, a side effect of the other antibiotic you were being
administered - I had told the doctor to give you a medicine to calm the spasms
while doing the scan especially as the stitches had been removed and wound was
open and it must have hurt terribly with the movement of the spasms – he said
that you were going to be sedated for the scan -
and you were not, how cruel they were to you! My angel though in
pain you sang hymns with the nurse who tried to calm you down by singing to you
– Oh my baby you were so Special! Only little saints act this way! My dearest
it was not our fault, we insisted as much as we could but it seems nobody was
human enough.
After that you were admitted to the
ITU unit – never to come out alive! Lying down there all intubated and pinned
with lines, you who could not stand hair pin, had to pass through 7 long weeks
lying down, not being able to speak or eat – though it was harder for you, yet
you endured this ordeal with great fortitude. As for the treatment, first they
said that the wound was to remain open to be dressed so that the puss would come
out. Then they decided to operate you, resulting in the stitches bursting after
a couple of weeks and you going into shock. We saw that something was wrong
(nobody telling us what was happening) you were unconscious with your eyes open
staring at the ceiling but they reoperated you only on the morrow; I was
desperate that day infact the first anaesthetist who assisted you during the
first operation when meeting us in the corridor remarked “She’s was operated
again!!” But we still hoped, when you came to, we brought you books and toys to
help you forget the pain in your tummy which at times you touched as you were
being kept off morphia and other analgesics an attempt was to be made to wean
you off the breathing machine - so all the pain you had to go through in vain
and at night we were not allowed to stay – at least you would have had the
assurance that we were close. We felt so helpless not being able to do anything
for you! Special thanks to those nurses and doctors in ITU who treated her with
compassion and humanity and not just as a mere bed number; and those nurses in
Gynae who had a kind word for during her recovery after the operation.
Words cannot
express our grief at having lost you but all the more at having seen you suffer
so much for an infection encountered in hospital and the hospital failing to
cure you. How unfair! Why were the lines continually changed when you had fever
and the fever never stopped – on the last day before you died all your arteries
were in spasm they had been perforated so much - why so much pain! Why did
they not wean you off the breathing machine soon after entering the ITU giving
us the chance to hear your sweet voice again and helping you not to get other
infections in your lungs! Why did they perform a tracheotomy, promising that you
would get less infections in your lungs! And all those lung suctions and you
continually conscious, how awful and painful they must have been! Why did they
not let us near you when you first woke finding yourself in a strange
environment without us being around to calm you and reassure you - you were
only 16, scared and having communication difficulties. Remembering those big
beautiful brown eyes of yours looking baffled at us trying to sort what was
happening. But who cared? We were also deprived of hugging you for fear of
hurting you because of the stitches and the lines; this is still tearing our
hearts apart to this very day, you went without a hug! We could only caress your
hands and hair and those caresses have to last a life-time.
We did our
utmost my precious asking people in authority for permission to be able to stay
near you for support. I even phoned the National Commission for Persons with
disabilities and asked the person in charge to intervene but he just told me
whom to contact and that’s all ignoring that you were in ITU and needed all the
support you could get. Oh how weak I was on that day I could barely climb the
stairs to go to the office. Why was everybody so insensitive to your young age
and your disability – it seems that your sufferings were to be to the utmost.
We were always there behind the door in the cold. We slept there during the
night in a cold noisy corridor, sometimes also inhaling the fumes from the
hospital compressor. Shameful after all that we (two parents crippled with pain
at seeing their only child in that state because of the hospital) were going
through no one from the hospital administration approached us to support us. A
child is dying due to an infection in the hospital, our only child and nothing was done to give make the
tragic situation easier for her and us. God only knows how much we tried, we
could not tell you this not to upset you, as near you we had to be strong and
serene, bottling everything in. Destroying you they destroyed us too.
Several
questions come to us now looking back on the situation. Why on Monday morning
in the Gynae wards remedies were not more expedient resulting to your
deteriorating so quickly? Why prior to this more attention was given to the
fever especially as the records in the file showed that you suffered from
‘multiple allergies’ to various drugs? Why were not some samples sent abroad
immediately where better labs are available as it seems to the end the bacteria
was not identified? Why was nylon thread used (as I was told by a doctor) as
you was allergic to nylon and synthetics (suffering from allergies and eczema) –
could this have been the cause of the fever as it may have caused
inflammation? A thousand questions arise at such a tragic loss! They said
that as you were obese you were more prone to difficulties in healing – so does
MRSA or 'the plague' (as it is being
called) attacks only the overweight or is it due to unclean environment and
equipment and other precautions like handwashing and other hygiene? Why the
morning following the operation were both wounds during your bath washed too
with ordinary tap water and soap – I immediately remarked this to the nurse but
she said that this is what is normally done – Could this have cost my daughter’s
life?
This
beautiful special child was taken from us to a far better place we know – being
more innocent than other children due to her disability and having suffered so
much with such courage makes her shine Above. She suffered in silence, the
silence of an innocent lamb. It’s no wonder that on the 19th St.
Joseph’s Day, while her Daddy was with her, she raised her hands to the crucifix
hanging in front of her and after a short while she lost consciousness never to
regain it and went to Heaven early at daybreak on Tuesday 23rd. At
that moment, her aunt thousands of miles away in Australia, saw her in a dream
dressed in white, rising in the clouds looking upwards happily and laughing her
joyful laugh – go to Heaven Karen my dearest, most precious gift,
you certainly deserve it! Though it is very painful for me to go through all
this, but what you went through Karen needs to be told for others to learn; and
persons going to hospital for operations say a little prayer to Karen she knows
what getting MRSA means, she was an innocent victim at 16! Dearest you fought
so hard for your life, bravely and without a grumble, you labelled ‘disabled’
were certainly more ‘able’ than most! An example to other youngsters who ought
to bear this in mind before throwing their lives away in one way or another
which, unfortunately, is getting more frequent. When feeling that nobody
understands you remember, for Karen it was a struggle to be express herself and
be understood, yet she fought for her life to the very end! Overweight persons
who are stared at when passing by and criticised, not to say ridiculed, Karen
knew this ordeal too (even in hospital where doctors to know better) – but she
was never referred by any doctor for hormonal testing to see the reason for this
as we were advised by a doctor in ITU to do had she survived. We are still
bewildered and can hardly believe that this has happened – stricken with pain,
existing and not living - so let this be an eye-opener to many hoping that no
parents have to pass through this horrifying experience.
Beloved
daughter our only hope now is to be reunited with you once our time comes which
we do not think is too far away as we are heartbroken at our loss! You asked us
to go home while still in the Gynae Ward in the morning at the beginning of this
terrible tragedy (now I only wish I had done that you would not have been worse
off) – your last trip was in a hearse to your funeral mass to the Sanctuary of
Saint Therese of Lesieux ‘the Little Flower’ – the Church which you loved so
much my little blossom. All we can do now is visit your tombstone – heartshaped,
you always loved hearts, obviously you who could give only love and knew no
hatred, revenge, conceit… While celebrations are going on for Malta entering the
European Union, we cry our eyes out missing you in every small chore around the
house, from peeling vegetables, cutting out patterns for sewing, hanging clothes
for drying, helping Dad in the garage, etc. – we certainly cannot celebrate, our
life has been ruined. Often we wonder had we known influential persons or been
rich would things have turned out as they did? Sorry my dear daughter but we
are modest people, and perhaps you suffered more than your share because of
this. We are sure that now you found the joy you always seeked and never got
tired of – you loved having fun so much like all youngsters – bowling, swimming,
bumping cars walks by the seaside, etc. How can we go on without you? Each day
is an ordeal for us. Now I don’t have you to wipe the tears from my eyes and
stretch a smile on my lips with your forefingers when I am upset! Till we meet
again my love, pray for us and help us pull through! Mum and Dad.
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